It took 3 years before school started to take my little girl’s struggles with reading and writing seriously. After an initial online screening and a meeting with SENCO.
A woman from the local council came to assess my little girl. The result was they believed she had dyslexia and put extra support in class. I was told there was no point in getting an official dyslexia assessment, it would not change anything.
There are two types of dyslexia tests that a child may do to check if they have dyslexia.
To learn more about dyslexia assessments see "Step by Step Guide Dyslexia Test".
All children are different and learn at different rates. Yet parents/carers can be the first to spot that their child is struggling and want a dyslexia test to be organised.
Read below the top ways that parents/carers of dyslexic children organised a dyslexia test and got extra help. Based on real stories, with real quotes.
Schools often are unable to fund a formal dyslexia test and some felt the child did not need one. So parents/ carers have often arranged and paid for private dyslexia assessments themselves. To learn more about dyslexia assessments see: "Step by Step Guide Dyslexia Test".
Parents Stories:
“We had to go private as our son's primary school failed him year after year even when we asked for intervention they were not interested!”
“We had a private assessment done when our son was 7. Best thing we ever did. It looked at lots of different areas, giving us and the school lots of ways to support him.”
Sometimes schools will organise for the child to have a dyslexia assessment. Yet this does not happen very often due to school funding. Instead the school may get an informal assessment from a SEN professional.
Parents Stories:
“School sorted her full assessment and they have been really supportive. She was diagnosed in year 5 but had interventions in place from year 2. It might seem like a long time to wait for school to assess but we honestly didn’t feel like any support was missing.”
“We booked and paid for it ourselves. There is no funding allocated for any form of diagnostic testing. If you want it done you to have to arrange and pay for it yourself these days!”.
Online screeners used in school are not always reliable and can give false results. If the child is still struggling a formal dyslexia test would give better results.
Parents Stories:
“We had to go private. School did put support in place after doing a screening test. But they said the test results did not show clearly if he had dyslexia”.
“We did not know that my child did not get referred for a dyslexia assessment because the online screener said she did not have dyslexia. Thankfully we didn't listen to either school and went private”.
All the cards are available as part of a "Mooki Cards". Complete with 56 cards and storage wallet.
Many parents/carers of dyslexic children arrange their own private dyslexia test. Below are some of the organisations they used.
Getting a formal dyslexia diagnosis can help the child and their school. It can help the child understand why they struggle at school and make suggestions for how school can help.
“For my son having the dyslexia diagnosis at the beginning he hated! But through time he found his way. His "dyslexic brain" as he calls it now works for him. He's a proud ambassador for dyslexia at his school now”
Sadly many parents/carers have felt they have had to fight school to get a dyslexia test for their child.
Below are the top 10 reasons schools gave for not doing a dyslexia test. Real parent comments and stories:
If you are struggling to get help for your dyslexic child, see the section below. Includes how to speak to teachers so they understand and what help school can provide for a dyslexic child.
To learn more about dyslexia tests and assessments, see this easy step by step guide.
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